Wednesday, May 5, 2010
updates
I've spent over a week in and out of hospital. I'm home now, hopefully for good. But I'm very tired and am not allowed to take pain medication. This makes me grouchy.
If you are trying to get in touch with me, it will be a while before I get around to reading emails and such. So just hang in there and try again in a week.
The hospital it's self is absolutely lovely. It's a small 'country' hospital with only one floor and the most marvellous staff you could imagine. The nurses are really attentive. I was in acute care for most of the time (the rest of the time I was in the ER) which is probably why there were so many nurses around.
One of the reasons why I was in and out of hospital is because my White Blood Count was so low and they didn't know what was going on. I went to the ER, they did blood work, it looked fine, gave me 4 litres of IV stuff and sent me home telling me to come back if things get worse. The next day, I'm worse, I go back, repeat.
On the third day in the ER, the good doctor was in again and he got me into a CT scan right away. Within 20 min of those results the specialist was called in. A couple of hours after that there was another procedure with biopsies and heavy drugs.
It's all pretty serious stuff but it was nice to have things move so fast.
It was a combination of causes that sent me to hospital. The immediate cause was damage done to my colon by anti - inflammatory drugs (who knew? They admit I'm not an excessive user.) and a food born infection that a healthy individual would easily have fought off.
The thing is, they found a lot more damage than that would explain. Things like why would my white blood cells go down when I'm fighting an infection? My endocrine system is off kilter too. Lots of other lab results that are opposite to what they should have been under those conditions. It's like my body responds opposite to the stimulus.
There is something very serious going on here. Something that even the Lyme cannot explain. I have some more tests coming up but I'm very afraid that they will get frustrated and stop looking before they discover what's doing all this damage to me.
In an effort to end on an up note: I learnt how to Tat. One of my room mates was a absolute marvel at tatting and she not only taught me how to do it, she gave me a shuttle and some cotton. It's very easy on my arthritis.
Also, I have the best friends. Thank you everyone for cheering me up when I was so scared.
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3 comments:
Wow, that is indeed scary! I'm so glad you have good friends around to help cheer you up when you need it.
I'm crossing my fingers that the doctors and specialists won't get frustrated and stop looking before they discover what's doing all this damage to you. I hear your concern and understand it; I'd have the same fear. However, I really hope they will have the needed perseverance, and will keep looking until they find the right answer to all of the questions.
I'm thinking of you. {hugs}
Eeek! I'm sorry this is happening, glad they are taking care of you, and hope you find some answers soon. Sending good thoughts your way.
You really are scaring me now. At least it seems as if the doctors are taking you seriously - I hope they continue to be reasonable and observant. (hugs)
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